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Members' Business — S6M-10827 Paul O'Kane: Dying in the Margins

Thursday 16 November 2023 12:50 PM


That the Parliament welcomes the University of Glasgow and Marie Curie research project, Dying in the Margins, as well as The Cost of Dying photography exhibition taken from the project; understands that the project ran from 2019 to 2023, and was funded by the Economic and Social Research Council (ESRC) and UK Research and Innovation (UKRI); further understands that the project shed light on what it sees as the profound effect that people’s socio-economic circumstances can have on their end of life experience; understands that, as part of the project, participants who were living with a terminal illness were photographed by Margaret Mitchell to create images conveying aspects of their end of life experience, and were given a camera to document their end of life experience themselves; considers that the project highlights the important challenges that are faced by people with a terminal illness who are living with poverty, and what it sees as structural disadvantage, including, but not limited to, unsuitable housing, energy costs and lack of income support; commends the bravery of the project’s participants, their families and carers, who documented their lives at, it considers, the most challenging time, to inform the public conversation around improving the end of life care for those living with poverty, including those in the West Scotland region, and what it sees as structural disadvantage; recognises the expertise of those who worked on the project, including University of Glasgow researchers, Dr Naomi Richards and Dr Sam Quinn, University of Auckland researcher, Professor Merryn Gott, and Marie Curie Head of Research and Innovation, Dr Emma Carduff; notes that the photography exhibition will be displayed in the Scottish Parliament on the week commencing 13 November 2023, and further notes the encouragement for MSPs to visit it and consider how they can tackle some of the issues that it raises.

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